How Gene Therapy Saved a Child from ‘Bubble Boy’ Disease
How Gene Therapy Saved a Child from ‘Bubble Boy’ Disease
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Gene therapy helps Virginia 12-year-old battle rare ‘bubble boy' disease
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How Gene Therapy Saved a Child from “Bubble Boy Disease”
How Gene Therapy Saved a Child from “Bubble Boy Disease”
Dec 21, 2022
ucsf.edu
To help raise awareness for Jakob, a young boy with "Bubble Boy Disease," U of A Music professor Michael Frishkopf created a unique, powerful song in collaboration with Jakob’s mother. Using a process known as sonification, Frishkopf converted a genetic sequence into a melody, while Jakob’s mom wrote the lyrics. Read the full story and listen to “Jakob’s Song” here: https://www.ualberta.ca/en/folio/2025/02/u-of-a-professor-turns-genetic-marker-for-bubble-boy-disease-into-music.html | University
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