Exciting news! We just released a new 90-second animated video that breaks down "What Is Fragile X?" 🧬 This is the first of four engaging whiteboard videos aimed at raising awareness and educating about Fragile X Syndrome, the premutation, and its associated conditions. Whether you're a self-advocate, family member, caregiver, educator, or health professional, this video is for you. Check it out and share with someone who could benefit from learning more about Fragile X. Together, we can spread

Have you participated in a clinical trial? Now is the time! Together, the FRAXA Research Foundation and the National Fragile X Foundation encourage families living with Fragile X to participate in clinical trials. We do not currently have an approved treatment for Fragile X syndrome, though there are a few under investigation. Investigational treatments go through rigorous testing, including clinical trials, and must be approved by the FDA before they are available for public use. There are seve

Fragile X Syndrome (FXS) is a rare genetic disorder that profoundly affects a person’s cognitive development, behavior, and physical health. It is the leading cause of mild-to-severe intellectual disabilities like autism spectrum disorder. Fragile X Syndrome has no cure. However, therapy and medication can help manage the symptoms. Clinical trials also continue to explore new possibilities for managing and potentially mitigating the impacts of FXS. Learn more from our blog: https://studies.scien