Poppy The Prairie Dog on Instagram: "WAHOOO! It’s Friday! Happy Weekend everyone 🥰❤️ • • • #wahoo #wahooweekend #poppytheprairiedog #prairiedog #cute"

Poppy The Prairie Dog on Instagram: "Poppys getting extra sleep to try and wait up for the big man tomorrow 🎅🎄"

This video captures just over one month in the lives of families fighting Sanfilippo syndrome type B — a rare, terminal childhood disease. In less than 36 days, families and communities across the country raised $4.2 million by Thanksgiving, and met our $5.5 million goal by December 1, to pursue potential early access to a treatment many parents were never told existed. That milestone matters. But it is not the finish line. The process still in front of us — access decisions, timelines, regulato

1,2,3,4,5,6,7,8,9,10,11,12,13,14?🤔